Patients and caregivers play a crucial role in improving cancer care through the Patient and Family Engagement program, providing valuable insights into the patient experience.
The program has expanded to match patient advocates with researchers, helping design more authentic and participant-friendly clinical trials and studies.
Brandelyn Bergstedt, director of Fred Hutch Cancer Center’s Patient Experience Program, became a patient advocate after a personal experience with misdiagnosis during pregnancy.
Author's summary: Lived experience improves cancer care and research through patient engagement.